Advocacy in Action: International Patient Group Improves Hereditary Angioedema Diagnosis and Care Across the Asia–Pacific

Authors

Jane C.Y. Wong, The University of Hong Kong
Cheryl C.W. Tsui, The University of Hong Kong
Kristie C.W. Lao, The University of Hong Kong
Jovilia Abong, De La Salle Medical and Health Sciences Institute
Adli Ali, Faculty of Medicine, UKM
Dharmagat Bhattarai, Advanced Center for Immunology and Rheumatology
Michihiro Hide, Hiroshima University
Ankur Jindal, Postgraduate Institute of Medical Education and Research, Chandigarh
Anthony Jordan, Auckland City Hospital
Hye Ryun Kang, Seoul National University Hospital
Constance H. Katelaris, Western Sydney University
Narissara Suratannon, Faculty of Medicine, Chulalongkorn University
Sze Chin Tan, Tan Tock Seng Hospital
Yong Hao Lim, Hereditary Angioedema International
Deborah Corcoran, Hereditary Angioedema International
Fiona Wardman, Hereditary Angioedema International
Henrik Balle Boysen, Hereditary Angioedema International
Anthony J. Castaldo, Hereditary Angioedema International
Philip H. Li, The University of Hong Kong

Publication Date

1-1-2025

Document Type

Article

Publication Title

Clinical and Experimental Allergy

Abstract

This study demonstrates that patient advocacy groups significantly enhance medication availability and improve diagnosis of hereditary angioedema (HAE), particularly in emerging economies within the Asia-Pacific region. This study supports integrating patient advocacy group involvement into management guidelines, emphasising their role in improving access to diagnostics and treatment for HAE.

APA Citation

Wong, J., Tsui, C., Lao, K., Abong, J., Ali, A., Bhattarai, D., Hide, M., Jindal, A., Jordan, A., Kang, H., Katelaris, C., Suratannon, N., Tan, S., Lim, Y., Corcoran, D., Wardman, F., Boysen, H., Castaldo, A., & Li, P. (2025). Advocacy in Action: International Patient Group Improves Hereditary Angioedema Diagnosis and Care Across the Asia–Pacific. Faculty Research and Scholarly Works. Clinical and Experimental Allergy. https://doi.org/10.1111/cea.14623